Module 1

Module 1: “Understanding Health and Health Promotion for People with ID”
Updated February 2024

Introduction to Module 1:
The cases of this module are designed for LEND and UCEDD trainees to learn moreĀ about the adult phase of the life course continuum of health and health care forĀ people with developmental and intellectual disabilities. By participating in this case-based curriculum, LEND and UCEDD trainees will gain knowledge and perspective concerning: common health issues for adults with ID; socio-cultural influences on health of adults with ID; self-determination and person-centered care as essential elements of health promotion and healthcare for adults with ID; the importance of competitive employment and place of residence on health status; and the central importance of optimal health status on quality of life and on the ability of adults with ID to live the lives they desire in inclusive communities. These cases were created by the Association of University Centers on Disabilities (AUCD) and Westchester Institute for Human Development UCEDD, with input from the Nisonger Center UCEDD and Sonoran UCEDD, and with support from the HealthMeet Project of The Arc.

Click on the name of the case to link to the opening case history:
Case 1: Mr. Herman Cruz, a 57 year old man who has diabetes and is obese, visiting a new primary care provider
Case 2: Ms. Terry Schaeffer, a 35 year old woman, on a visit with a new primary care provider.
Case 3: Mr. James Foster, a 22 year old man visiting the emergency department because of a severe cough
Case 4: Ms. Grace Tester, a 63 year old woman with dementia and breast cancer.

Developed in 2012 by Karen Edwards, MD MPH, Susan Havercamp, PhD, Leslie J Cohen, JD, and David O’Hara, PhD with review and input by Jamie Perry, MD MPH, Adriane K. Griffen, MPH, MCHES and George S. Jesien, PhD of the Association of University Centers on Disabilities; Revision and update in 2021 by Karen Edwards, MD MPH